tag:blogger.com,1999:blog-9214836190058278976.post5559636672877657869..comments2023-04-01T20:39:11.469+08:00Comments on Lumpy Custard: One Year of CopaxoneLee-Annehttp://www.blogger.com/profile/13681783112565880436noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-9214836190058278976.post-45754658322877430912014-07-13T16:23:00.061+08:002014-07-13T16:23:00.061+08:00Hi Maggie. I've written a short post regarding...Hi Maggie. I've written a short post regarding your website. Cheers Lee-AnneLee-Annehttps://www.blogger.com/profile/13681783112565880436noreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-87358524769624779912012-03-31T21:01:20.346+08:002012-03-31T21:01:20.346+08:00Hi Bergona. Thanks for keeping me up to date. Um...Hi Bergona. Thanks for keeping me up to date. Um, I don't recall having any tiredness or muscle weakness when I started Copaxone. I would say if it gets worse or you continue to be worried call and ask your MS nurse about it or perhaps the Copaxone Team. (Have the MS nurses and Copaxone Team being calling you to check you are ok?) I would also think that if it was a Copaxone effect you are experiencing, it may just settle down with time. But every one is different. I am glad my blog helped to keep you positive about starting Copaxone... that was my intention, as there is just so much negative stuff out there. I think people find it far easier to write about the negatives and just forget the positives. Again Bergona, good luck.Lee-Annehttps://www.blogger.com/profile/13681783112565880436noreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-31113622173018073632012-03-26T07:50:21.747+08:002012-03-26T07:50:21.747+08:00Hi Lee-Anne
I have started with the Copaxone. No p...Hi Lee-Anne<br />I have started with the Copaxone. No problems with the needles or the itching but I feel really tired and I feel like if my muscles were weak. did it happen to you? If so? Is it permamnent or will it tend to disappear?<br />thanks. BegonaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-24480911070798968922012-03-23T12:18:10.085+08:002012-03-23T12:18:10.085+08:00Hi
I have started with Copaxone (only two days) an...Hi<br />I have started with Copaxone (only two days) and all my expectations were that horrible that I am positively surpried (need to stay positive). For the moment the injection itself it is something that I hardly notice, and the itching after that is bearable. Let's hope it continues like that. I will keep you informed<br />Thanks for the positive input that your blog gave me before starting!! BegonaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-80575880061274054192012-03-01T21:16:31.785+08:002012-03-01T21:16:31.785+08:00Let me know how you go Begona, ok. I see Prof Ker...Let me know how you go Begona, ok. I see Prof Kermode. I recommend him to all my MS friends. Also have you read any of Prof George Jelinek's books. I know I have dished him in some posts, but he has done the research that clearly shows a link between saturated fats and MS activity. Diet has no side effects. Has your neuro checked your vitamin D levels? Good luck with Mr C. I hope he plays nicely for you. xxLee-Annehttps://www.blogger.com/profile/13681783112565880436noreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-172391144136186152012-03-01T17:04:03.568+08:002012-03-01T17:04:03.568+08:00Thanks Lee-Anne for the reply
My neuro is Professo...Thanks Lee-Anne for the reply<br />My neuro is Professor Blacker un Hollywood Hospital.I would be very happy to catch up with you one day. Let' s see how I cope with the satart of CopaxoneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-19067829233947076952012-02-28T14:08:12.963+08:002012-02-28T14:08:12.963+08:00Hi Begona. Sorry I haven't replied sooner. I...Hi Begona. Sorry I haven't replied sooner. I'm sorry you have been diagnosed with MS. You are going to feel terrible for a while yet, but know that there is HOPE and a life after diagnosis. Who is you neuro? Starting Mr C was hideously scary, but now it is just one of those routine things I do every day. Sometimes I don't even feel Mr C's tickle!! Maybe one day we can catch up and chat.Lee-Annehttps://www.blogger.com/profile/13681783112565880436noreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-1617701116509498982012-02-24T16:59:53.084+08:002012-02-24T16:59:53.084+08:00Dear Lee-Anne
I am also a 70's baby living in ...Dear Lee-Anne<br />I am also a 70's baby living in Perth. I was diagnosed in June after my first crisis and unfortunately had another one in October. My neurologist has decided that I should start with copaxone. I am as you were, scared to death, for this reason reading your blog has been an inspiration. My C day is going to start in a couple of weeks and I hope also that rather than ruining my life is going to be something that will help me keeping stronger and healthier. Thanks for sharing the positives, as you say when people share their experiences is usually to talk about the negatives. Thanks so much, BegonaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-73071656137395920192012-01-04T22:34:53.146+08:002012-01-04T22:34:53.146+08:00So glad that it has been working for you, and that...So glad that it has been working for you, and that you have been able to avoid the dreaded side effects!! And fantastic news about your MRI and lack of lesion activity ... Here's to an even better new year for you and your family.Jane_Perthnoreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-60812352497553173292011-12-23T15:59:20.559+08:002011-12-23T15:59:20.559+08:00Thanks Nat. Merry Chrissie to you and your family...Thanks Nat. Merry Chrissie to you and your family too.Lee-Annehttps://www.blogger.com/profile/13681783112565880436noreply@blogger.comtag:blogger.com,1999:blog-9214836190058278976.post-85274409429265210112011-12-21T22:31:06.104+08:002011-12-21T22:31:06.104+08:00you are an inspiration and I had no idea you were ...you are an inspiration and I had no idea you were doing this, least of all DAILY!! Youre an amazing chic and even though we dont get to see each other as much as we used to, I'm glad we crossed paths to learn a little bit of how the other half lives. Have an awesome xmas guys. xxNat Herridgenoreply@blogger.com